The Sjogren's Syndrome Survival Guide

This book was delivered as promised via Amazon.com. I could not put the book down for a few days until I read it. It told me everything I wanted to know about Autoimmune diseases and more, and gave me much more appreciation for my Rheumatologists Doctors Philip Sedrish and Marielisa Sedrish at Gulfcoast Rheumatology at Slidell Memorial Hospital. They have been doing everything like clock work with me and I have been a very trying case for especially for Dr Philip Sedrish. These doctors are definitely experts in Rheumatology and all the other Auto-Immune Neuromuscular and Skin Diseases such as (RA, PM, DM, IBM, Sjogrens, Scleroderma, Lupus, ALS, etc...) that go along with their specialty. They referred me to the best specialists: Dermatology - Dr Eric Tabor; Cardiology - Dr Ignatius Thomas; Pulmonology - Doctor Dennis Dale and Doctor Janine Parker; Opthamology- Dr David Slagle; Gastroenternology - Dr Anthony Albright. These doctors all work well with each other and me to address all my symptoms associated with Dermatomyositis, Sjogrens, and Psoriasis. Thanks to these doctors, I have not had to drive 100 miles a trip to the MDA Clinic at Children'sHospital in New Orleans or even further as may others end up doing. Thank you to the authors of this book and my friends from The Myositis Association, Polymyositis and Dermatomyositis forum. I recommend this book to anyone diagnosed with a Auto-Immune Disease and associated Cancer. Bill Morell Diagnosed with Dermatomyositis, Sjogrens Syndrome, and Psoriasis.

The number of books avaiable on Sjogren's Syndrome are very limited, and this book is a welcome addition. I found it to be informative, easy-to-read, and honest. I liked the frankness of this book as it portrayed a realistic picture of what life is like for people who have Sjogren's. This book covers a wide range of topics and does not make light of life with Sjogren's. I could relate to much of what was written. Also, this "survival" guide does not offer easy solutions on how to "conquer" Sjogren's. It recognizes that Sjogren's cannot be conquered but, at the same time, it provides the reader with realistic and helpful suggestions on how to cope with this illness. It also recognizes both the variability of how the illness affects people, as well as the commanalities that we all may share. My thanks to Dr. Rumpf and Ms. Hammitt for taking the time to write The Sjogren's Syndrome Survival Guide.

So much I didn’t know. Great book.

I found this book to be very helpful. I was diagnosed recently. It was not hard for me to undwrstand though some reviews complain of that. I think it depends on how many doctors you have seen and how much yoy understand your diagnosis as explained by your doc. The only complaint I have is that I presented with vasculitis and severe autonomic dysfunction. Dysautomia . POTS postural orthostatoc tachardia syndrome. I Don't feel there was any real info about that or why it happens. Also many think this disease is for old woman. I am only 39. Another common misconception is that it only causes dry eyes and mouth, making others who never heard of it say "that's not so bad". Everybody is different and this disease is veru serious for some of us. My quality of life has been drastically altered by sjogren's. I think more info about those things would be beneficial. I need a cooling vest year round as I am unable to maintain my body temp. I have hypwrhidrosis like a human sprinkler. Was hoping there would be more info pertaining to me as my dry eyes and mouth started in just the past six months. This book kind of makes it seem as if that is one of the first symptoms. We are all different. And buy the way to any family or friends reading it, just because we Don't "look" sick like a chemo patient does not mean we Don't feel like death warmed over. Just some fyi.

This book made Sjogrens not so scary and provides so much information on all of it that the doctors can't tell you. All of the people that took their time to write and contribute made it even better. It's like meeting them in real life and realizing you are not alone and someone else knows exactly what you are going through and they have dealt with it too. Very emotional read for the newly diagnosed so don't forget tissues.

Excellent book which shows medications including explaining drugs & symptoms. Very easy to understand and it's a great book to bring to a doctor.

The book was very informative & helpful in many ways, it was an easy read. I have had Sjogrens for 7 years. I go to the dentist 3 times a year for a, cleaning I brush my teeth fastidiously, after every meal; I always have- and I floss and use a dental pick b/c the food now sticks in my teeth b/c of no saliva :( Read the book, you will learn something!

As a new Sjogren's Syndrome patient, this was very helpful.

シェーグレン症候群の目に見えない症状のつらさが伝わってくる患者用のガイドブック。 膠原病診療のみならず、日常診療のなかでの医師患者関係のむずかしさや治療とは別のHealingの大切さを実感させられる。 なんとも読みやすい英文と中身です。

For someone that was just recently diagnosed with Sjogrens, after the early sign about 30 yrs ago, I found this book a wealth of knowledge. Very pleased I purchased this. Many Drs don’t even know about this decease so making them believe in your issues was frustrating, to say the least.

This book is brilliant. It answers a lot of questions. This is a must have for anyone with sjorgrens. Thank you so much.

Lots of useful and handy information to have at hand.

This book answers a lot of previously unanswered questions, both about the physical aspect of Sjogrens and also the emotional ones which only a sufferer would understand. Well worth a read.